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View Full Version : To the RoC & KoC community I am humbled by your support.



MFnBonsai
9th February 2017, 11:50 PM
To everyone that reads this from my son, myself and my family we are graciously humbled by the outpouring support from the RoC & KoC community.

My son recently found out that he has an eye disease that has basically legally blinded his right eye. Although we can hopefully have a corneal transplant help him gain some sight back in that eye the left will need laser surgery to stop it from happening to it as well.

Due to the fact it is expensive I created a gofundme page 1 day ago, and with the help of a really good friend shiggity who put my fumbled words into what I wanted to say the response has been fantastic.

To some I have been an ass over the years but to see differences put aside to help my son and my family I cannot put into words enough of the thanks we can repay.

To see $425 of $5,000 goal raised in 1 day is unbelievable and by next Thursday when we find out more of his condition it will only help us in being able to get this surgery done before it is too late and he loses sight in his left eye.

I will keep everyone updated as much as I can.

With thanks.
bon.

Shiggity
9th February 2017, 11:58 PM
For those of you who may be curious, here is the link. Please share if you can. (We can all sab him later!) :D

https://www.gofundme.com/jacks-medical-costs

Danny
10th February 2017, 01:58 AM
$475 in one day is amazing !!

those who have donated, ya'll are amazing!
I'll help as soon as i put some monies in the bank :)

lets hit this target, show the world what a gaming community can do when one of us - needs us!

Screwdriver_LaCN
10th February 2017, 10:44 AM
KoC and RoC stuff is irrelevant to Real Life Bon mate! Im sharing the link to the rest of LaCNers and also will share it on fb etc. I hope you can gather the money needed fast! :)

I hope lots of people help so your son can get better soon!

MFnBonsai
12th February 2017, 12:59 AM
Thankyou to all that have helped so far.... It is beyond belief the support my family has seen from this online community....

Thursday the 16th is the day we see the laser surgeon and will find out the exact costs involved and well the amount donated so far will only help in being able to get the surgery done ASAP....

They said it needs to be done within the next 5 months but with the communities support when we see the surgeon on Thursday it could come down to not when we can come up with the funds needed but when they have a time available to do it....

With much thanks,
bon and his family....

Sonata
14th February 2017, 10:45 AM
Thankyou to all that have helped so far.... It is beyond belief the support my family has seen from this online community....

Thursday the 16th is the day we see the laser surgeon and will find out the exact costs involved and well the amount donated so far will only help in being able to get the surgery done ASAP....

They said it needs to be done within the next 5 months but with the communities support when we see the surgeon on Thursday it could come down to not when we can come up with the funds needed but when they have a time available to do it....

With much thanks,
bon and his family....

It'll never cease to amaze me how close knit everyone in this game is. For everyone on here, 75+% of the game is considered an "enemy", but then something like this happens and everyone is suddenly on the same team. I hope the support you've found is enough to cover everything and make it happen as quickly as possible. I know the feeling of worrying about your childs health, and it's not cool. Good luck~

Drudgery
15th February 2017, 01:42 AM
I have to say that I have always considered Bons a true gentleman anyway. How could people not help?

MFnBonsai
15th February 2017, 07:27 AM
Will have an early night tonight son has specialist in the morning. Will update once I know more on treatment, cost and timeframe of when the surgery will be scheduled.

Once again thanks to those that have helped. So far $1090 has been raised to which I will be forever grateful.

EDIT....


Today we had his initial appointment. We found out it will cost $4000 for the 2 surgeries he has to have done.

In a week they will be sending out the information pack that explains the surgeries he will be having and I will explain it in more detail then.

The surgery is set for 13th of April which is my birthday so hopefully the gift will be his eye sight will be fixed.

Thank you to all that have donated so far. I cannot express the thanks your help and support has given us.

Thanks.
Hadley family.

Denver
15th February 2017, 11:02 PM
Best of luck man, prayers are with you

xeros
18th February 2017, 12:20 AM
Glad to hear it's progressing well bon :)

MFnBonsai
1st March 2017, 08:42 AM
$1,725 of $4,000 goal
Raised by 37 people in 20 days

An update.... to those that have donated it is beyond belief the support you have given and the ability for my son to have what is needed to be done....

So he is booked in for cross linking and the preventative surgeries on the 13th of April and he is in good spirits knowing that we are getting close to being able to afford it....

The only thing worrying him about it is the loss of vision he will sustain for a few days and the loss of technology and not knowing what he is going to do with himself for those days....

If anyone has any ideas let me know....

Once again thanks....

MFnBonsai
23rd March 2017, 04:10 AM
When we started this gofundme page we needed $5000 to cover the 2 surgeries needed and future expenses that would be incurred concerning Jacks eyes. Once we knew what the surgeries would cost we lowered the amount to $4000 to reflect what was needed just to get them done.

Unbelievably we are nearly at the amount to cover the 2 surgeries to which we are extremely grateful. Without everyone's help and support we would not have got this far.

Unfortunately there are still other medical expenses that will be incurred and I hope everyone will still help to reach the goal of the original $5000. I have changed the amount to $5000 and am thankful for the donations raised so far.

Jack is looking forward to having the surgeries done and knowing we nearly have the funds eases his mind and his families as well.

Once again thank you everyone without your help and support we would not have got this far and hopefully will reach the goal soon.

With thanks.
Hadley family.

MFnBonsai
4th April 2017, 05:20 AM
Just an update ;)

Would like to update and thank everyone involved that the goal of $4000 has been reached. Less the fees taken out by gofundme and stripe there is $3400 which covers the surgeries. There are follow up appointments 4 infact and a hard contact lens that is needed that is the reason for the fund still online. But getting the amount for the surgeries was more than I could ask for and my family is extremely grateful.9 days to go and Jack is preparing for the day ;) Thank you.

Whishy
7th April 2017, 07:22 PM
Appreciate the updates, I think I speak for everyone who has ever spoken to you that we all hope the big day goes well for Jack and the entire family!

MFnBonsai
10th April 2017, 12:43 AM
https://www.gofundme.com/jacks-medical-costs

New photo added on the page of Jack before we went in to have his eye measured and prescription checked before the surgeries on Thursday.... Not the best photo but I had to snap it before he knew what I was doing ;)....

MFnBonsai
12th April 2017, 05:08 AM
Just wanted to post a thankyou to 2 people for donating last night via paypal as gofundme takes too much out in fees so I was asked if they could do so through paypal....

1 donation was for $65 and the other was for $34.... so that makes $99 added to the $4100 obviously makes it $4199 donated so far....

I would also like everyone to know that Jack will be having his surgeries at 2pm Adelaide time tomorrow (Thursday).... I will let everyone know how it went after we get home and get him settled in....

Once again Thanks to those who have helped so far this could not have been done without you....

MFnBonsai
13th April 2017, 09:07 AM
Today was the day Jack had his surgeries and I thought this would be a good time to update everyone on how it went.

We arrived early and checked in, signed consent forms and paid the fees in full (Thank you everyone who donated and sent best wishes, Without you this would not have been possible). Jack was then taken to a waiting room where post op medicines (painkillers and eye drops were explained) and then he took his preop muscle relaxer and was left to wait in the waiting room.

He was then taken for the crosslinking procedure and then the preventative procedure. Afterwards he felt good, knew what was done and it was pain free. We then took him home and by the time we got home the pain relief wore of and he experienced some pain untill the post op meds were given to him.

All went well and he is currently resting and sleeping which we were told was the best thing for him to allow the eye to heal.

The Adelaide Eye and Laser Centre where the surgeries were performed was absolutely the best. The staff, the facilities was no doubt better than I ever expected. The staff were friendly and made Jack feel at ease.

He would like to thank everyone for helping showing him how people can come together to help out someone in need. Jack and his family are forever grateful.

Thankyou
Hadley family.

ROLYAT
13th April 2017, 09:13 AM
Good to hear Bon, best wishes for a full and speedy recovery!

MFnBonsai
19th April 2017, 05:44 AM
Sorry to hijack this page with another update but you guys and girls have been with my family through this journey so here goes another :).

Today was the day after Jack had the soft lens removed. Both his eyes have been open all day although still blurry and hazy and light sensitive he has enjoyed not having to sit in the dark.

In Jacks words Thank you to the RoC & KoC community and the friends my dad has made. I used to think dad wasted his time on a txt based game but you have shown me that there is more than just a game here it is a community that comes together in my time of need. Thank you all, Jack.

On that note this update is done

MFnBonsai
20th April 2017, 12:32 PM
Had another 2 donations via paypal again.... I have not added the paypal donations to the gofundme page as offline donations as I am not sure if they take a % for fees off future donations so I will keep everyone updated on here....

The total before was $4199 and the 2 donations were for $64 each....

So new total is $4327....

MFnBonsai
11th May 2017, 08:53 AM
Just an update....

Just had a donation this morning/last night or atleast while I was asleep so call it what you will for $64.... So new total is $4391....

Jack is doing well his vision is starting to get better in his left eye.... brightness is still a bit of an issue but he is coming good....

His next appointment is in 6 days on the 18th of May so we will find out how the eye is healing.... Obviously due to his sight not being that great he is having some time off school which the school has been great at understanding his issues.... once he is back he should get back into the swing of things....

Screwdriver_LaCN
11th May 2017, 09:18 AM
Thanks for the update Bon! :)

MFnBonsai
11th May 2017, 09:33 AM
Yeah been a bit busy with helping Jack out and preparing for my own surgery so I just wanted to keep people updated on how he is doing....

MFnBonsai
18th May 2017, 10:57 PM
Unfortunately we all got the flu and the eye specialist said it would be better to cancel the appointment and gave us the 1st of June to go back. Although we could have kept the appointment I could not justify getting others sick just so jack could have his appointment.

If it was a necessity for Jack to keep the appointment we would have gone but they were understanding and a new date was set.

Screwdriver_LaCN
19th May 2017, 11:15 AM
Take care bon! You all get better soon! And good luck on 1st of june

MFnBonsai
3rd June 2017, 11:15 AM
New update....

On Thursday arrived at surgeons at 1pm, appointment was for 1:30pm, saw the optometrist at 3pm then an hour later the surgeon.... for some reason it was a busy day there.... by 4:30pm finally on our way home....

Good news Jacks left eye is healing well.... better than expected with being told to put his glasses in to get a new prescription so it should help with the blurriness he is still experiencing....

Bad news his right eye is deteriorating further.... there is a silver lining he is being put on the waiting list for the cornea transplant and the surgeon said it could be 6-12 months....

Hopefully sooner the better but Jack took it in his stride and although it was a long wait he didn't mind after being reassured his left eye is right on track....

On Friday received a call from the surgeons receptionist and they have booked Jack an appointment at the hospital for next Friday at the eye clinic.... This will be when we will find out how long it will take for Jack to receive the transplant in the right eye.... We were expecting his appointment to be sent out via mail and then we would have to wait for the date thinking it would be 3-6 months before he would get the appointment....

Due to how bad his right eye has deteriorated in the last month and a half they are going to get on top of it and hopefully get him seen too faster than we expected.... I will update again next Friday to let you all know ....

king_archibald
21st July 2017, 06:59 PM
Hi Bon,

How's it going with Jack's eyes?

MFnBonsai
21st July 2017, 11:39 PM
He is doing well. Left eye keeps changing and have had to change his prescription now that he can wear glasses twice in the last month. Seems that while waiting for the new glasses to come his eye has changed and we have to go back to get it checked again.

As to the right well we are just waiting for his transplant date. Until then its just a waiting game.

Thanks for asking.

chaser1
27th July 2017, 08:17 PM
I shared this on my facebook page. Good luck Bonsai. I wish you guys the best. So far, you're a worthy adversary, ;-)

MFnBonsai
30th October 2017, 01:21 AM
Haven’t updated for a while as we were waiting for the surgery update....

Just got a letter in the post today.... Jacks pre op appointment is the 8th Nov and his corneal transplant surgery will be done on the 15th of Nov....

Danny
30th October 2017, 09:02 AM
thats great news, glad it didnt take the 6-12 months like you first assumed.

how long is the healing going to take, will jacks eyes be fit as a fiddle by christmas then if all goes as planned with the op?

regards
danny

MFnBonsai
30th October 2017, 09:08 AM
will find out at the pre op appointment as to what the healing process will be and how the eye will function during the healing process....

MFnBonsai
15th November 2017, 11:09 PM
Here is an update of what I posted on the kerataconus Facebook page as you have all helped so much and been along for this ride it’s time for some good news.

Just a quick update. My son had a partial transplant yesterday in his right eye we found out today at the follow up appointment.

When the surgeon uncovered his eye today to put the drops in my son said “whoa I can see”. The surgeon said what can you see and my son said “you”. The surgeon then put his hand up and said how many fingers can you see and he said “5”. It brought myself and his mum to tears. He also tested his left eye as my son had CXL in April and we were amazed at how much his vision in his left eye had improved.

A year go this disease made his right eye completely blind and although it is the first day after the transplant he is in high spirits. As we were walking out of the hospital my son said he could even see the surgeons fingernails and although blurry that’s is amazing.

I posted yesterday about my sons operation and asked for advice from members here to help ease my sons mind and you were all great. He still has a long way to go but with support and the great medical staff at the Royal Adelaide Hospital things are looking so much better.

My post here is not to brag about how well he is doing although I cannot be blamed for doing so. My post here is to thank those that gave advice and support as without it he was stressing big time. Thank you all.